The V Family {Downers Grove Family Photographer}

I’m not sure where to even start with this family.  They have touched me in so many ways and I feel like my writing here won’t do justice to how special I think all 5 of them are.  Meet the V Family.  So much love and hope.  Mom, Dad and their 3 adorable children – Noah, and twins Laine and Emily.  Sadly, they were dealt with a devastating disease, LINCL-Batten Disease, a rare genetic illness that robs you of speech, balance and mobility, and is fatal, usually between the ages of 8 and 12.  Noah and Laine both have the disease.  Shortly after, Mom and Dad started the Noah’s Hope Fund  – www.noahshope.com to support research, and raise funds and awareness of this disease.  They give so much to their family and children, and to the Batten community.  Please take a moment and check out their site and learn more on what you can do to help fight Batten disease.

I wanted to share their story to you, but they are more than their story.  They are FAMILY.  Full of love and laughter and hugs and hope.  I have been fortunate to have gotten to know them and was so thrilled when they asked me to photograph their family.  THANK YOU J & T.  I loved our session and capturing your family together like this.